







You stand alone, blinded by darkness. There is no sight and no sound. All you can taste and smell is the tang of your fear. With all other senses rendered useless, you strain against your skin to feel. The blackness pushes back, both trapping you, and making you feel vulnerable as it stretches to infinity on all sides.
Your reward warmth. It slides up your arm, drawing goosebumps in its wake. You should invite it, but it freezes you with its heat. Not welcome a breeze, a snuffling breath.
It moves over your shoulder, brushing against strands of your hair that beg to flee this strange presence. Coldness touches the crease between your neck and collarbone and then pulls back, as though the terrible unknown has tasted you. You fight the urge to break into a blind run.
You need to see it but don’t want to at the same time. Your eyes stain at the edge of their field of vision until finally, they pull your head to the side. You see it, and part of you wishes to return to the unknown blindness. A pale porcelain face with black, gaping holes where eyes should be. In return, the sight of you is tumbling into the endless nothingness of its eyes. More terrifying than it looking at you, is the fact that it shouldn’t be able to, and yet it is. With its head in a coquettish tilt to the side, it considers you from an unfathomable abyss surrounded by the jagged edges of its shattered eye-holes.
Finally, a sound fills the space between you. A sharp cracking that reminds you of breaking glass and bones. The perfect smoothness of the face begins to crack and collapse. The china pieces tumble inwards, spinning into the nothingness contained within the creature. A ragged hole has opened, frozen forever in a silent scream.
It wants to make you scream too. The knowledge is imparted from nowhere but is so certainly true that it infuses every part of your being and each muscle screams at you to move. With your heart hammering terror through you, you turn on your heel and run.
It gives chase, arms outstretched in a twisted parody of longing.
The dark dissolves into peace, of a sort. The dream is gone, and the room comes into focus. Light seeps through the curtains but the terror drums in you still, with the strange feeling that it has followed you into waking.
This particular post has been percolating in my brain for almost a week now. I suppose I am writing it in an effort to move it from my brain and into the world so I don’t have to think about it as much. This post is entitled the sequel, but I’m actually going to start at the beginning. Strap in if you’re going to read on, it could be a long one.
A few years ago I began having terrible headaches. What I originally thought were migraines, began to last for days, never abating in their intensity. Eventually they just stopped giving me intermission at all and I had 24/7 migraine. I’d lose vision and have bouts of nausea from the pain. It was horrific. Then I began noticing other symptoms. numbness in my face, or worse, tiny stabbing pains like pins and needles or a constant, bone-deep ache.
My favourite of all of these new and exciting symptoms, auditory hallucinations which I had to look up and are apparently called… wait for it… exploding head syndrome. Oh yeah, you read that right. Brilliant name, terrifying thing. It didn’t make me think my head had exploded, it just sounded like something else had. Just as I would be falling asleep I would hear it, a massive explosion. Not like a TV explosion, a frightening, there is a gas leak and my house has exploded kind of explosion. I would be flooded with adrenalin, heart pounding, flailing out of bed to find G snoring peacefully beside me. It’s sort of difficult to fall asleep after that.
I went to the doctor. Now, I had been to the doc on and off about this and they kept giving me medications for migraine and I tried them all, only to find that none of them were really touching the pain. I decided to be firm and I asked for a scan. I knew something was wrong. The doctor pooh-poohed me but did as I asked and sent off for a scan appointment.
The scan came and went and I got an appointment for the results. I went alone because I wasn’t really afraid of the results, I just wanted to get answers. When I walked into the room I was not expecting her to say that they had found an 8cm tumour inside my head. I didn’t really know what to say, what to ask. She explained that a tumour doesn’t mean cancer, just a growth that shouldn’t be there. She was sending for a referral and I would need to go and see someone at the hospital to review my options. Then I left to walk home.
I was doing OK until I got outside, put my headphones in, and pressed shuffle on my music. Who wants to live forever by Queen was the first song. I can always appreciate a nice bit or irony. Standing in little cement courtyard adjoining the main street, I both cried and laughed at the same time. I was frightened and unsure and the universe was now throwing shade at me like a drama-bitch-from-hell. What am I supposed to do with that?
G was at work and my sister was waiting to drive into work with me for the day. I had to tell them both. For the record, telling your husband this news over the phone while he is at work… it sucks for both of you. Not crying when you tell your sister so that she can cry and you are the strong one, it sucks too. Worse when you have to tell your parents.
After that suckfest, I went to work, where I told my boss, and cried. Embarrassing? Hell yes, but he doesn’t need me to be strong for him and lets face it, I needed his support.
What I didn’t know then, is that what would follow would be the worst two years of my life. In summary, I had multiple scans and the consultant I went to didn’t seem to be able to make head nor tail of me. I felt ignored and belittled when I saw him. Not as though I was wasting his time, but more that I didn’t know what my symptoms were because he couldn’t explain them. I felt stupid, exhausted and in pain.
It was an effort for me to function every day without crying, dying or doing something else melodramatic. I slept poorly, if at all, and I was in pain all day, everyday. It syphoned every inch of joy from me and left me a shell of myself. There were whole days when I could barely get the energy to speak to people. I definitely didn’t have what it took to engage in proper conversation.
Everyone always says you find out who your friends are at times like this. My god I am a lucky girl. There were people who I held dearly, who couldn’t even lift the phone or send a message to ask how I was, there always are those people, but there were so many who gave such warmth and love and support that I am actually overwhelmed when I think of it. I feel deeply loved.
Eventually, after all of the medical issues, the discovery of a second tumour (which I found out about by accident, and my initial consultant denies even existed), and a referral to a new consultant, I found a way forward and I had surgery in January 2017.
The first few weeks were tough going. They performed the surgery though my nose (hooray for brilliant doctors and the marvels of medical science). I cannot describe to you the feeling I experienced when I sneezed for the first time during my recovery. Let’s just say that I never want to do it again!
After a few weeks though, I woke up without a headache. The world was my oyster. This is the first time in two years that I had been without pain. I wanted to do everything. Mostly, I wanted to go out and greet the world. An hour later I was about a mile from my house and I realised what a terrible mistake that was. Baby steps Alexis! I made it home in one piece and took it day by day instead. I also received a raised eyebrow from G, for pushing my luck.
The day I realised I had recovered, I was making dinner, and I realised I was singing. Then, I realised I couldn’t remember the last time I had sung anything. It made me incredibly sad to think that and I decided I was going to YOLO the hell out of this life. I can honestly say that I made 2017 my year. I learnt to drive, I embraced writing again, I took the trip of a lifetime to Norway to see the Aurora Borealis and I published my first book. I crammed everything into that year and I have not a single regret.
The only problem, in November I began having headaches. A niggling doubt surfaced that the tumour was back. A check-up with my consultant resulted in a hasty scan and a hasty second consultation. I knew the answer, but I stayed hopeful.
I was wrong to be hopeful.
My tumour is not only back, it is making headway into new and interesting spaces it had not occupied before.
I kept it together during the meeting but the moment we stepped outside, I started to cry. Not because the tumour is back, we’re still pretty certain it is as benign as last time (massive thank you universe, your gift has not gone unnoticed), but because I’m not sure I can do it all again. I don’t want to have to fight for treatment and to get up every day. I don’t want to feel this joy and energy that I have won back, being sucked away. I don’t want to watch G struggle to cope with the knowledge that I am in pain and there is nothing he can do to fix it. I don’t want to be the cause of that look of worry on the faces of my parents, sister and friends. I just don’t want it.
Then, G held my hand and he told me that if it had to happen, he was glad that it happened to us. He doesn’t want this for me, but we have no children, incredible support in one another and our near and dear and my boss and work were incredible and supportive over the last two years. He told me I was strong and that we could do this again.
I don’t want it, but it has chosen me.
I’m going to kick its arse.
This is a reworking of an old piece that needed a bit of love and a new lease on life.
The landscape stretched below us. A twinkling world, shrouded in rain. There were so many lives down there under those lights, all filled with joys and sorrows. For so long, I had felt nothing. The cooling bliss that was once a rush of joy had eventually stolen all other emotion from me. I was hollow now.
When they told me my mother had died, I knew that there was a feeling I should have. I reached for it. Rummaging around in the empty landscape of my soul, but I came up empty. Unable to mourn the loss of the feeling, never mind the loss of my mother.
“What the hell are we doing up here? It’s pouring!”
I slanted a look at her. She was still beautiful. Face drawn now with the addiction, eyes duller than the shocking blue they had once been. Her hair hung limp and drab in the pouring rain where once it had been a lustrous mane of golden blonde. She was a beautiful ruin.
“I’m not really sure. I used to come here when I was a kid. It was my happy place, you know?” She knew. She knew everything.
“And?” She drew the simple word out, perhaps trying to sound like she didn’t care. I could tell that she did.
“I liked to watch the lights,” I continued. “Imagining all of those lives being lived down there beneath them.”
“Lives?” She laughed then. It was almost her old laugh, but it held the tinny sound of emptiness. “That’s not real! You’ve tasted real living. All of that mundane Suzy Homemaker bollocks is a descent into madness baby, and there is only one thing that lifts you up.” She placed the syringe in my hand. It felt so light, almost weightless, but I knew it held a whole world trapped inside that clear plastic. “That right there is the candy-coated topping, it’ll take all your pain away.”
I looked at her. She talked like a camp movie villain, but the way her eyes suddenly came to life for the syringe was magnetic. They sparkled with anticipation and passion as she spoke of it. If love was real, then surely there was none greater than hers. Throwing her arms wide and turning her face to the rain she spoke with rapture in her voice, “It’s the only way to fly!”
I felt sick, “but I don’t want to fly. I only want to feel.” The words slipped out meekly, but it didn’t matter. The venom I hadn’t intended to show was still there. The accusation of thievery that I had never voiced outright but had felt for some time. She heard it too. Head snapping down to face me with ice in her eyes she mocked me.
“I want to feel,” she mimicked. Her eyes were walls of blue stone as she drew back her hand and slapped my face. “Can you feel that?” Hell yes I could. The stinging imprint of each finger caressed my cheek, “Bitch.” She drew back again and slapped the other cheek. I didn’t even try to stop her.
“You want to leave me is that it? I gave you meaning! I gave you everything when your family turned their backs on you. They threw you out in the street, but I stayed with you. I gave you bliss, and you want to leave me?” She was spitting the words at me, and the burn of the truth in them held more hurt that her fists ever could.
“I don’t know!” I cried, “Maybe?”
She now looked as though I had been the one to slap her. Mouth agape as the rainwater poured into it and then twisting in anger. Suddenly she was not quite so beautiful. “You ungrateful whore! You’re blaming me because they turned their backs on you at the graveside? They turned their backs on you and you now turn your back on me, is that it? They didn’t want you baby, but we do.” She gestured to the needle still cradled in my palm, pleading now, “me and the bliss, we want you baby. We need you.”
It glowed warmly there in the haze of the headlights, heaven wrapped in plastic. Begging to be slipped under the skin and take the hurt of the world away. It would heal me.
I knew better now. Comfort was tempting, but also temporary. Each high was shorter than the last, demanding more cc’s from the needle to fill the emptiness that consumed me when the warm fuzz turned back into a cold dark ache.
Heaven and hell wrapped in plastic and holding me hostage.
I watched my fingers unfold as though from afar. The syringe hung there for a moment, balanced on the tips of my fingers as though I alone could be the scales of justice. In the end, it tumbled to the tarmac, bouncing and then lying still. I stared at it for a moment, my reflection a strange halo in the puddle in which it lay, and then I crushed it under the heel of my boot.
She had watched the whole melodrama, eyes riveted to me, feeding on my pain like an emotional leech and then dropping silently to her knees when I made my decision. It was not the ending she had expected.
“How could you?” She moaned, hands scrabbled uselessly at the broken remnants of our life. “You’ve lost your mind.”
I was towering over her. Steady and yet shaking, unsure yet resolute. “I don’t need it anymore,” my voice faltered. I could do this. I had made my decision. “I don’t need you,” turning, I walked to my car.
“Don’t leave me.” She whimpered, “You can’t do this, can’t abandon me.” I glanced back at her. A sad figure huddled on the ground. I felt such pity that she was so broken, but I knew I had to save myself.
“I can’t stay,” I explained patiently. “You’re killing me.”
I got into the car and her voice followed me there. “Please,” she begged. I couldn’t. There was no going back now. No giving in. I chose to live and shut the door.
My throat was raw from shouting. My face stinging from the blows it had taken, hands still tingling from delivering them. I drove back down into the lights and I left my addiction on the bluff.
She looks different, yet the same, in the photograph. Her eyes have laughter lines. Deep crinkles made by stories I did not know. I have solace that she’d been so happy, sorrow that I was not the cause. Now, I never would be.
I lay my flowers and leave.
Microfiction in 50 words or less.
As well as trying for the #52weeks52stories this year, whatever writing challenges that take my fancy, a new children’s book, possibly a new adult book and keeping up the photography, I’m trying my hand at watercolours.
I’ve never thought I had any artistic talent but I had the paints and I thought I would give it a try. I’ve done five so far. Top left is terrible, but only my first effort. I’ve gotten better as I’ve gone along.
